Wow, that is too complicated for me! My ANA and lip and parotid gland biopsies were negative for SS but a Rheu I am seeing feels I have SS. So can anyone explain to me why is it not thought as urgent or even possible to prevent or minimise the progress of Sjogrens related neuropathy -which in my case has led to issues with my balance/ equilibrium, because my nerves have died and cannot now be regenerated? My sense is that these allergic reactions, including anaphylaxis and pancreatitis - are because I do not have enough moisture in my body to flush away the toxins from imunesuppressant medications and other drugs I've tried.ĭoes anyone know if my hunch has been researched and validated ever? If so is this one of the reasons that Sjogrens appears to be taken less seriously by rheumatologists and GPs than other rheumatic diseases are? Or have I just been very unlucky perhaps?Īlso is it the case that immunesuppressants increase the risk of us developing non Hodgkin's Lymphoma or is this just speculative? I'm somewhat confused because with RA the emphasis was on remaining in these medications to slow down the disease and hopefully minimise the risk of erosion of synovial joints. I had pretty serious side effects with these and other drugs and these have given me a fear of all medications. I'm seeing my new rheum at the end of this month and am under a neurologist too for small fibre neuropathy and Ganglionopathy as part of my SS.īecause of the RA I was put into Sulfasalazine then Methotrexate with Hydroxichloraquine followed by Azathioprine with courses of Prednisolone in between.

Having been misdiagnosed and treated for seronegative RA six years ago, I was rediagnosed with primary Sjogrens two months ago by +ANA and lip biopsy.

How to you pronounce evovax